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Rare Mindset Forum
Horizon Therapeutics 

"will lead to big things"

"imaginative"

"incredible"

AUDIENCE: PATIENT
ADVOCACY ORGANIZATIONS

Overview
Patient Authentic worked with Horizon Therapeutics to produce the Rare Mindset Forum, a two day event designed to bring together rare non-profit leaders with the goal of offering professional development and helping these groups brainstorm how they can collaborate to move the needle in mental health support for the rare community. 

Held onsite at the Horizon headquarters, this event was instrumental in strengthening Horizon’s relationship with these leaders and achieving their core goal – 100% of attendees indicated they planned to find ways to collaborate with fellow leaders they met through the event.

SUCCESS METRICS

  • 100% of attendees had a positive experience with the event (rating their overall experience excellent or good)
  • 100% of attendees made connections with fellow leaders that will help them better serve their community
  • 100% of attendees plan to follow up to collaborate with an organization they met through the forum


“Lilly is an exceptional collaborator and partner, with outstanding leadership qualities. She leads with a unique combination of personal experience, creativity, and an unwavering work ethic. Together, we successfully led The Rare Mindset Forum, a two-day gathering specifically tailored for PAG leaders in rare disease. The overwhelmingly positive feedback received from attendees directly attests to Lilly's adeptness in fostering imaginative thinking, meticulous organization, and an innovative approach that amplified the impact of the event. Looking forward to building another event like this with Lilly in the future!”

What's
BEING SAID?

work with lilly

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100%

QUOTE FROM Tom D’Amato, Director of Patient Advocacy at Horizon Therapeutics

100%

  • Of attendees indicated that they plan to follow up to collaborate with a fellow organization they met through the Forum.
  • Of attendees felt that the connections they made at the event will help them better serve the community.
  • Of attendees learned something new that inspired them to implement change at their organization.

"What an incredible day and a half. I am grateful to be included and already see how this group will create meaningful connections and collaboration in the future."
- Attendee

"What an incredible day and a half. I am grateful to be included and already see how this group will create meaningful connections and collaboration in the future."
- Attendee

  • Of attendees indicated that they plan to follow up to collaborate with a fellow organization they met through the Forum.
  • Of attendees felt that the connections they made at the event will help them better serve the community.
  • Of attendees learned something new that inspired them to implement change at their organization.

100%

Rare Autoimmune Emerging Leaders
Amgen

"nothing short of amazing"

"life-changing"

"powerful"

AUDIENCE: PATIENT
Advocates & Influencers

OVERVIEW

Patient Authentic works with Amgen to produce the annual Rare Autoimmune Leaders Workshop, a two-day professional development and networking event for patients living with a rare autoimmune condition who were identified as emerging leaders in the community. 

Patient attendees reported that the event was "powerful", "life-changing", and "nothing short of amazing". They walked away with a wealth of resources to continue to grow in their advocacy work and with life-long connections to help them get there. 

Held onsite at the Horizon headquarters, this event was instrumental in improving the overall impression of Amgen

SUCCESS METRICS FROM 2023 EVENT

  • 100% of attendees had a positive experience with the event (rating their overall experience excellent or good)
  • 100% of attendees would recommend the event to a fellow advocate
  • 100% of attendees felt the connections made with fellow leaders at the event will help them better serve their community
  • The attendee impression of Amgen improved by 2.6 points on a scale of 1-10 after the event